Nikolas is our third child. A joy to our lives. He was born with probable Lenz microphthalmia syndrome. Probable because he tested negative for the gene but his genetic doctor made a clinical diagnosis. This is an extremely complex and rare syndrome, involving extensive medical and physical difficulties. Nikolas is also battling cancer right now. He has Stage 5 Wilms Tumors. God gave us Nikolas for many reasons. And we learn those reasons every day.
Sunday, October 16, 2011
Update from surgery....
So it turned out Michigan couldn't get us in for two weeks! So my sister has a neonatologist friend in Houston who recommended a doctor that would be able to do the surgery. She even called him up and made sure with everything else going on with Nick and his eyes that he would be able to. So we headed to Houston Wednesday evening and arrived Thursday afternoon, met with the doctor and he did the surgery on Friday!
It was a pretty rough surgery though, what's supposed to only be a 1.5 to 2 hour surgery turned into a 6 hour surgery because Nick's are more sunken in and the especially the colobomas. The doctor said the procedure went well though. And because he was intubated for for song he had some retraction and stridor after surgery and had to stay for two more days in the hospital here. We actually just got out the of hospital today and will be traveling home tomorrow after we meet the the doctor to check his eye again. We won't know if the procedure was really successful for a few weeks because of healing and swelling but he will be monitored by doctors in Kansas City. He is irriated because his eye is completely swollen shut still and he can't see out of it at all right now. But he's back to himself thankfully and we're praying for fast recovery!
Thank you so much for all your prayers, they each mean so much!
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Awww sweet baby boy. My heart is breaking for you that you have had to go through so much. You are constantly in my prayers. Sending tons of love your way.
ReplyDeletePraying for you all. For sweet baby Nik's speeding recovery and for your continued strength. Your amazing to me! safe travels!
ReplyDeleteHugs to you all
Melissa
(www.yesallfivearemine.blogspot.com)