Nikolas is our third child. A joy to our lives. He was born with probable Lenz microphthalmia syndrome. Probable because he tested negative for the gene but his genetic doctor made a clinical diagnosis. This is an extremely complex and rare syndrome, involving extensive medical and physical difficulties. Nikolas is also battling cancer right now. He has Stage 5 Wilms Tumors. God gave us Nikolas for many reasons. And we learn those reasons every day.
Tuesday, March 15, 2011
Before and after lip pictures
Before
Sorry....I cannot seem to organize them on here for some reason. But you get the picture-from top to bottom lol
I found your blog from another CHARGE blog. I noticed my daughter was born only a day after your son and she has CHARGE syndrome also. It is neat to see other families in the same situation. Your son is adorable and I hope he continues to do well.
What an adorable bundle of cuteness! Those cheeks just kill me.
ReplyDeleteThe Dr's did a great job. How is he doing health wise?
I found your blog from another CHARGE blog. I noticed my daughter was born only a day after your son and she has CHARGE syndrome also. It is neat to see other families in the same situation. Your son is adorable and I hope he continues to do well.
ReplyDeleteJust checking in. Wanted to make sure all is well.
ReplyDelete