Well Nick is doing good. I think. His oxygen saturation levels are not good when he's off the oxygen. And last night they had to increase his oxygen to 1/2 a liter. Which is not a lot at all but he was on 1/16th of a liter for a long time. I am sure he needs to be suctioned more, probably deep suctioned too. He is eating a lot better, back up to 5 oz now. We had OT come by and she suggested that we add a thickener to the breast milk along with the formula we are already adding. The formula was for extra calories. So he still likes his milk with pedialyte and combining all these things together is pretty gross. After it's thoroughly mixed it looks like and has the consistency of yogurt. Yum. And I'm not sure if it's just the combination of things or its the pedialyte but parts of it can be chunky and clog up the nipple so it doesn't come out. Then when it does it shoots out like a water gun. Nick doesn't like that and neither do I. I already have to squeeze his bottle harder then it gets clogged and...oh my what a mess! But at least he's not choking on it when he eats anymore, that's amazing! He will have a swallow study done today, well hopefully today. Then we will know more about how much he is aspirating.
Thank you all so much for reading and for thinking and praying for us. It's been tough while in the hospital, we can't wait to get home.
We are struggling with Mason and oxygen levels too. Everyday he is getting better and better and I bet Nik just needs a little more time too.
ReplyDeleteHis food sounds..ummm different. Hope the swallow eval goes great.
He looks just beautiful!! Get well and get home soon!