Sunday, August 15, 2010

More bad news and miracles!

Well he's here! Our beautiful little Nikolas is here! He was born at 9:52 a.m. on Friday August 13, 2010. He weighed 7 lbs. 7.7 oz! And he is 19 1/2 inches long. He has brownish hair with blonde highlights and quite a bit of it! He had some trouble breathing at first and had to be on oxygen for a little bit, mostly because he had a lot of mucus he was trying to get out.
The neonatologist came to examine Nick and found some more issues going on. He didn't know what any of these things meant but we will have further testing at Children's Mercy when were are released on Monday or Tuesday. He went through a list of issues and every one broke my heart a little more, first he thought he heard a heart murmur but they were having a cardiologist come and do an echocardiogram to check his heart. Then he noticed how Nick's little ears are kinda folded down like they have been smushed (well yeah they have kinda been for 9 months!) and he thought they might be at a slightly odd angle ?!? what does that mean? He had no idea if it meant anything at all. Next, he notices some of his figures had contractures, meaning they couldn't completely straighten out all the way. He also noticed that his feet and legs seemed quite purple and he felt that the echo could tell us if he was having circulatory problems. He also noticed his that his eyes seemed a little small. They were also cloudy and the left one seemed somewhat swollen on the outside. He also had a hard time opening them. And again, he didn't know what any of this could mean. I broke down after he left the is so hard to not be able to hold your little baby and then be told more bad news about his condition and there is nothing I can do about it. I cried with my mom for awhile, I prayed too. I also knew that other things could be wrong, the neonatologist had only physically examined Nick. No tests had been done yet and there was potential for a lot more issues that we couldn't see.
After I cried for awhile and got some emotions out Joe and my mom helped me realize that there's nothing I can do by myself except pray and know that God is in control and that He has His hand on little Nikolas.
The cardiologist came and did the echocardiogram on little Nick's heart and she wasn't going to tell us the results! What?? Why not? Because she normally doesn't talk to the families if the test is normal! What?!? His heart is normal! Somehow Joe ran into her in the NICU and he said that I wouldn't believe it and she had to come tell me herself. I asked her if she was serious (wow, yeah I did). His heart is perfectly fine except for normal baby things that take care of themselves. My heart leaped for joy and I knew that God had done a miracle. I had seen on the ultrasounds myself before he was born that there was clearly an enlarging of his heart, plus the MRI had confirmed it as well. What a wonderful gift! I could barely contain myself! His heart was okay....praise GOD!

You thrill me, Lord, with all you have done for me! I sing for joy because of what you have done.

~ Psalm 92:4

Today he got his feeding tube put in and got to eat for the first time. He handled it pretty well and only threw up a little bit. He also pooped for the first time today! That is very good because they were somewhat worried about his bowels.

He is such a sweet little boy and he loves to snuggle and just sleep! He loves to suck on his pacifier too and sometimes his hand if he can get it in there.

Please continue to pray as we keep taking things one day at a time. God is in control!

p.s. if I forgot anything I will try and keep updating the blog with info and anything new we find out


  1. Bless the nae of the LORD our GOD for always loving us! I love you guys. GOD Bless your son Nicholas!


  2. Sorry... NiKolas. I spelled it wrong